kassidy62: nightwing (joker)
[personal profile] kassidy62
Mom's been having heart troubles. She's been to the hospital 5 times in 2 months or so. She's got atrial fibrillation, for starters. She's been put on Pradaxa, something that helps prevent strokes in people with her condition (and that drug company is another nightmare story all to itself - suffice it to say when the manufacturer makes all these nice gestures to help seniors pay for their over-priced meds? They turned her down because the doctor sent them the wrong forms and it was too late in the year to re-apply. And her insurance doesn't pay anything on it, and it's $300 a month at least. And they might not even have an aid program this year anyway so they can't say if they can help her next year - well, 2012, we applied in December. Anyway. Her doc sent IN THE WRONG FORMS, THEY CANNOT HELP HER). We got samples to tide her over a while, and then we managed to get state aid, so that was wonderful.

She's on several meds for high blood pressure,m also Cardizem, Betapace to try and help her heart stay in rhythm. She was referred to a Dr. Robert Martin, Jr., at Tennova (formerly St. Mary's). He likes to take a slow and steady approach when it comes to adapting a treatment plan for his heart patients. Which is one of the reasons Mom's been in the hospital so much. We tell him the treatment's not working, and that she had been diagnosed long ago with mitral valve prolapse, could that have gotten worse? That at any rate something else is wrong, the meds aren't working - he waved a hand and said the mitral valve thing was commonly misdiagnosed. He's never taken blood nor run any tests other than a kidney flow test, though we've told him the episodes are getting steadily worse, more painful, longer duration, with heart spasms and pain, blackouts and soaring blood pressure, to the point she's afraid she won't make it through too many more of these episodes. Which got her an increased dosage in two of her meds and a lecture about how some of his patients panic with afib and sometimes they're out of rhythm MOST of the time - a handy shaming technique.

And before you tell me the sensible thing, to go find another doctor, we've been that route. We started out at Ft. Sanders, where the first heart doctor gave her meds that specifically said in the warnings not to take together, and that had the visiting nurse completely puzzled and upset over. The last time we were at Tennova, a Dr. McBride treated her. I thought he was intelligent until Mom told him she had regular bouts of high blood pressure and heart pain at night, and he said, how do you KNOW? She said, well I have a BP monitor and I feel my heart race, and he quipped, "So stop taking your blood pressure at night."

So anyway, Mom calls me at work today and says the nitro isn't working this time (she didn't get it from Martin, she got it from her regular doctor, who at least listens to her). We go to the emergency room. She's sort of in and out of it at the point I pull into the front of ER, and I rush inside to the receptionist and ask if I can get help getting my mother inside. She asks me if I'm angry. I'm astonished, because I'm highly upset and trying to hurry for my mother's sake, but I guess I had tone when I asked for help? Or something. I tell her no, I'm not, I'm in a hurry and worried, my mother has serious heart problems and I need help. She goes on, saying, oh, well you sounded frustrated. Wtf? I'm scared, why are you asking me this shit? She tells me she'll send out someone with a wheel chair in a minute. Maybe 3-5 minutes later, a woman wheels out a chair. I'm standing by my mother, holding her hand. She's squeezing it, her heart is racing and then tightening into a spasm-like thing that is scaring her to death, and she's drifting in and out. A woman comes out, gets her in a wheel chair, takes her fucking insurance cards but not her BP or anything practical, then sits her OUT IN THE WAITING AREA. She's groaning, her heart feels like a big fist clutching in her chest, she looks like she might fall out of the chair, slumping down. I go up to receptionist and ask her if they can take my mom back because she's having a lot of pain and I'm afraid she's having a heart attack. She tells me there are a couple of people ahead  for the nurse to see first. You wouldn't believe the attitude on this woman - and this isn't the first time, I remember her from before. She's cold and antagonistic.

So we sit out in the lobby until my mother asks me to call 911 for an ambulance to TAKE HER TO ANOTHER HOSPITAL to get help. I grab a nurse, I'm frantic, and ask her to help. They get Mom in and a PA asks some questions (like, have you ever had this happen before? yes, we've been here, she's on lots of meds, Pradaxa, other stuff, doesn't seem to be helping. Is she on Warfarin? No, she's on Pradaxa, it's made for afib folks specifically (hello, don't you know that)? And well, have you missed your meds? Absolutely not.

They park her out in the ER hallway in the chair and ask her to wait. Finally they get her in a room and hook her up for a cardiogram, then leave her completely UNMONITORED again for an hour.

Finally she's admitted - still in afib, very low blood oxygen, more tests to be done, and I don't even know how to tell you what a horrible, inhumane experience that was for both of us. And it's nothing new.

She was declared DECEASED by Medicare this month and didn't get her check or her coverage for her meds. We don't know why. Today I got a piece of mail addressed to the PERSONAL REPRESENTATIVE OF M__ W__, DECEASED, offering condolences, then asking if I'd attend to her credit card bill. It was a collection agency.

Okay, I'm rambling. This was so very awful. In between her experiences and my own, I'm almost phobic about going to a doctor because they're dismissive, they act like the patient's an idiot (and I know there's frustration in dealing with patients and getting correct info out of them, and that includes my mother, and I know she's 77, but that doesn't mean you can throw her out with the garbage). Do you have to make her feel like you don't believe her when she says something is wrong, do you have to make her feel she's an idiot and you don't care if she dies in the middle of your filthy ER waiting room floor? 

Welcome to health care in America.

Date: 2012-01-12 03:07 am (UTC)
From: [identity profile] gryphon2k.livejournal.com
OMG! I'm so sorry your mother has to put up with that kind of treatment. Oye. I hate, hate, hate doctors, too. It takes a LOT for any doc to earn my trust, and they do have to EARN it.

And the collection letter. Holy cow, what a nightmare.

I'm so sorry, goob.

Date: 2012-01-12 03:33 am (UTC)
From: [identity profile] kassidy62.livejournal.com
I just don't know what to do anymore, you know? There's no respect or dignity for her, when she deserves so much more.

Date: 2012-01-12 03:24 am (UTC)
From: [identity profile] blackjedii.livejournal.com
:| that is super-sucky and unfortunately, far too common.

disgusting.

I will offer you a kitten (http://www.cat-lovers-gifts-guide.com/images/CuteKitten05.jpg) though, because kittens are cuddly?

Date: 2012-01-12 03:30 am (UTC)
From: [identity profile] kassidy62.livejournal.com
kitten always, thank you:)

Date: 2012-01-12 09:01 am (UTC)
From: [identity profile] enednoviel.livejournal.com
OMG, how horrible!
*hugs*

Date: 2012-01-12 01:47 pm (UTC)
From: [identity profile] kassidy62.livejournal.com
it is horrible and it just keeps happening. thank you for the hug - have one back:)

Date: 2012-01-12 10:00 am (UTC)
From: [identity profile] lolabobs.livejournal.com
Oh God, how awful, just absolutely awful. This has left me open mouthed in shock and dismay that they can treat someone in that way. Or fail to treat them. I'm so sorry this has hapened.

I can only send you and your Mom my thoughts and hugs and hopes that things improve xx

Date: 2012-01-12 01:48 pm (UTC)
From: [identity profile] kassidy62.livejournal.com
much love to you, lola. She walked out on the hospital last night - took a cab home. Today we try to get her a new doctor.

Date: 2012-01-12 01:17 pm (UTC)
From: [identity profile] marag.livejournal.com
Oh. My. Unspecified Deity. That's appalling. I wish I could loan you a few of our excellent doctors and maybe our hospital :(

I don't know if it will help, but you should absolutely complain about a person with a possible heart attack being stuck in a hallway. I've spent some time in ERs and if you come in with heart attack symptoms, they're supposed to, y'know, CHECK IF YOU'RE HAVING A HEART ATTACK immediately. If not sooner.

I'm so sorry :(

Date: 2012-01-12 01:55 pm (UTC)
From: [identity profile] kassidy62.livejournal.com
I wish to god I knew someone who would listen and help her, that's for sure. Not sure who to complain to, but I have an idea. First I need to find her someone that will listen.

Date: 2012-01-12 04:57 pm (UTC)
From: [identity profile] loyseofverlaine.livejournal.com
{{{Hugs}}} for you and your mother. This is shocking, it really is. Esp. since the ER person seems to be more worried that you're in a bad mood than that your mother is terribly ill. I hope you can find someone both more competent and caring.

Date: 2012-01-13 05:17 pm (UTC)
From: [identity profile] kassidy62.livejournal.com
we're trying but it's all really horrifying. Hope you're doing well, big hugs back:)

Date: 2012-01-12 06:40 pm (UTC)
From: [identity profile] didihutchimpits.livejournal.com
I'm so sorry! My thoughts and prayers are with you and your mum.

Date: 2012-01-13 05:17 pm (UTC)
From: [identity profile] kassidy62.livejournal.com
thank you, you're sweet:)

Date: 2012-01-13 02:17 am (UTC)
hardboiledbaby: (avengers emma gun)
From: [personal profile] hardboiledbaby
What. The. Fuck.

Babe, I'm so, so sorry this awful thing happened. Hospital staff have difficult, stressful jobs, but that is no excuse whatsoever for the horrible way you and your mother were treated. I do hope you find a doctor who actually gives a damn about his/her patients (they do exist, I promise). These Tennova people? Appalling.

*hugs hard*

Date: 2012-01-13 05:19 pm (UTC)
From: [identity profile] kassidy62.livejournal.com
*hugs you back* I hope you're doing better, baby.
(deleted comment)

Date: 2012-01-13 05:22 pm (UTC)
From: [identity profile] kassidy62.livejournal.com
long time no talk, but thank you so much for the hugs and commiseration:) Mom checked herself out of the hospital against the hospital's wishes, and currently she's at home, sleeping a lot. She's been having these spasms and the atrial defib a lot and it's been getting worse, the meds haven't seemed to help much. We're trying to find another heart doctor, someone who will actually run some tests and give her something to help.

I hope you're doing well!

Date: 2012-01-15 06:31 pm (UTC)
From: [identity profile] greenlady2.livejournal.com
Oh! My! God! This is so horrible. You have my most extreme sympathies. If someone treated my Mom this way, I'd be homicidal. And she's in her SEVENTIES?! Like, that's so ancient we just won't bother?! Are these doctors idiots?! Gah. I wish I could do something to help.

Date: 2012-01-16 08:20 pm (UTC)
From: [identity profile] kassidy62.livejournal.com
Thanks so much:) It's been HORRIBLE, frankly, and I had to say something at my LJ. One of the things I'll remember most is this basic lack of respect for her life.

change of subject: hey, you've just gotten recc'd at crackvan:)

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